On Monday May 4th, the Dutch medical privacy campaigner Guido van’t Noordende will visit us in Cambridge. OK, it’s a bank holiday, but that’s the only day he’ll be in town. His talk will be on The Dutch electronic patient record system and beyond – towards physician-controlled decentralized medical record exchange.
Four years ago, Guido blocked an attempt to legislate for a central hub for medical records that would have enabled doctor A to see the records of doctor B on a simple pull model; there would have been a hub at the ministry with read access to everything. Other countries have wrestled with this problem, with greater and lesser degrees of success; for example, Norway just passed a medical data-sharing law and are starting to figure out what to build. In Britain of course we had the care.data fiasco. And in the Netherlands, they’re revisiting the issue once more. This will become a live issue in one country after another.
The announcement for Guido’s talk is here.