If you listen to Radio 4 from 0810 on BBC iPlayer, you’ll hear a debate between Phil Booth of MedConfidential and Tim Kelsey of NHS England – the guy driving the latest NHS data grab.
Tim Kelsey made a number of misleading claims. He claimed for example that in 25 years there had never been a single case of patient confidentiality compromise because of the HES data kept centrally on all hospital treatments. This was untrue. A GP practice manager, Helen Wilkinson, was stigmatised as an alcoholic on HES because of a coding error. She had to get her MP to call a debate in Parliament to get this fixed (and even after the minister promised it had been fixed, it hadn’t been; that took months more pushing).
Second, when Tim pressed Phil for a single case where data had been compromised, Phil said “Gordon Brown”. Kelsey’s rebuttal was “That was criminal hacking.” Again, this was untrue; Gordon Brown’s information was accessed by Andrew Jamieson, a doctor in Dunfermline, who abused his authorised access to the system. He was not prosecuted because this was not in the public interest. Yeah, right. And now Kelsey is going to give your GP records not just to almost everyone in the NHS but to university researchers (I have been offered access though I’m not even a medic and despite the fact that academics have lost millions of records in the past), to drug firms like GlaxoSmithKline, and even to Silicon-Valley informatics companies such as 23andme.